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HAE Junior

Nonprofit

Patient organisation for a better quality of life of kids & youngsters suffering from hereditary angioedema (HAE).

Prague, Czech Republic
Health
1
Volunteer project
Languages
Czech
-
Fluent
English
-
Native or Bilingual
Member since September 15, 2020
About
HAE Junior is a Czech non-profit patient organization seeking to improve the quality of life of children and young people suffering from hereditary angioedema (HAE). Hereditary angioedema (HAE) is a rare lifelong condition, causing recurring painful swellings on various parts of the body. The organization was established in December 2019 in Prague by a group of parents of HAE paediatric patients. HAE Junior's goals are to support patient families, to provide information, to foster experience exchange and to facilitate inclusion.
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